CASE REVIEW CONFERENCES

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. One way for us to make an important difference is to share experiences and knowledge with each other.

FON now conducts Case Review Conferences among FON care center teams to promote exchange and engagement between FON care centers through highly clinical patient-based case presentations and discussion. The purpose of these events is to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

The FON Case Review Conference Planning Committee is excited to share the byproducts of these events with the broader FON community. Please utilize the resources below to learn more about each topic discussed to date.  

Please reach out to FON staff  with any questions or if you are interested in hosting.  

Past Case Review Conference Summaries & Resources

Case Review Conference #1:

Host: Children’s Hospital of Philadelphia

Topic: The Growing Problem of Aortopathy in the post-Norwood Reconstructed Aorta 

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Case Review Conference #2

Host: Texas Children’s Hospital

Topic: Advanced Therapies For the Failing Fontan Circulation

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Case Review Conference #3

Host: Mayo Clinic

Topic: Should this patient have a Fontan? Implication of AV valve interventions

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Case Review Conference #4

Host: Lucile Packard Children's Hospital Stanford

Topic: Beyond the Heart: Tackling the Social, Emotional and Educational Challenges of Kids with Fontan Hearts

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Case Review Conference #5

Host: Children's Hospital Los Angeles

Topic: Cyanosis after Fontan

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Case Review Conference #6

Host: Cincinnati Children’s Hospital​

Topic: Fontan-Associated Liver Disease

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Case Review Conference #7

Host: Lurie’s Children’s Hospital of Chicago 

Title: Beyond Protein Loss: Impact of PLE in the Failing Fontan and Timing of Transplant Referral 

Case Review Conference #8 

Host: Children’s Hospital of Wisconsin and Children's Hospital Colorado 

Topic: Physical Activity Programs for Individuals with Fontan Circulation

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Case Review Conference #9

Host: Vanderbilt University Medical Center

Topic: Fontan Operation: When and Who

• Highlight cases of adult patients with single ventricle heart disease who have deviated from the current palliation strategy.

• Promote discussion about how some patients with single ventricle heart disease may benefit from having alterations in their palliation strategy.

Case Review Conference #10

Host: Rady Children’s Hospital

Topic: Creation of Azygous Fontan Connection to treat pulmonary AVMs in Fontan

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