NETWORK NEWS
FON #HeartHero Spotlight: Meet Kate!
Despite living with just half her heart, Kate chooses to see all of life’s blessings. She brings joy to everyone she meets. Her infectious smile lights up a room. She doesn’t let her health issues define her.
Exciting News: Now Accepting Research Proposals
We are thrilled to announce that the Fontan Outcomes Network Research Workgroup is now accepting research proposals!
FON #HeartHero Spotlight: Nathaniel Castillo
Each month, FON features a member of the community who exhibits heroic qualities in service of our mission as our #HeartHero.
19 Hospitals From Across the U.S. and Canada Join the Fontan Outcomes Network
Launched in June 2021, the Fontan Outcomes Network (FON) now comprises 31 care centers who work together in a shared vision to improve outcomes and quality of life for all individuals with single ventricle heart disease and Fontan circulation.
FON #HeartHero Spotlight: Gloria Gilbert
Each month, FON features a member of the community who exhibits heroic qualities in service of our mission as our #HeartHero.
FON #HeartHero Spotlight: Jacob Critser
Each month, FON features a member of the community who exhibits heroic qualities in service of our mission as our #HeartHero.
FON #HeartHero Spotlight: Judy Fabiniak
Each month, FON features a member of the community who exhibits heroic qualities in service of our mission as our #HeartHero.
FON #HeartHero Spotlight: Dr. Janine Arruda
The Fontan Outcomes Network is a community of patients, family members, caregivers, clinicians, researchers, and supporters, dedicated to improving the quality of life and health outcomes for individuals with single ventricle circulation. Each month, we feature a member of the community who exhibit heroic qualities in service of this mission as our #HeartHero.
FON #HeartHero Spotlight: Amanda Harper
The Fontan Outcomes Network is a community of patients, family members, caregivers, clinicians, researchers, and supporters, dedicated to improving the quality of life and health outcomes for individuals with single ventricle circulation. Each month, we feature a member of the community who exhibit heroic qualities in service of this mission as our #HeartHero.
FON #HeartHero Spotlight: Leslie Castro
The Fontan Outcomes Network is a community of patients, family members, caregivers, clinicians, researchers, and supporters, dedicated to improving the quality of life and health outcomes for individuals with single ventricle circulation. Each month, we feature a member of the community who goes “above and beyond” in service of this mission as our #HeartHero.
Do You Know Someone Who Could Benefit from Single Ventricle Patient Day?
Four individuals with single ventricle physiology created Single Ventricle Patient Day in 2018. Now in its third year, the event founders share why they felt compelled to create a Single Ventricle Patient Day, its impact, and why others should consider registering and joining this year’s event on Saturday, October 30 from 11 a.m. to 5 p.m. ET.
FON #HeartHero Spotlight: Johnathan Caldwell
The Fontan Outcomes Network is a community of patients, family members, caregivers, clinicians, researchers, and supporters, dedicated to improving the quality of life and health outcomes for individuals with single ventricle circulation. Each month, we feature a member of the community who goes “above and beyond” in service of this mission as our #HeartHero.
FON #HeartHero Spotlight: Landon Jones
The Fontan Outcomes Network is a community of patients, family members, caregivers, clinicians, researchers, and supporters, dedicated to improving the quality of life and health outcomes for individuals with single ventricle circulation. Each month, we feature a member of the community who goes “above and beyond” in service of this mission as our #HeartHero.
Fontan FAQs: Is Exercise Safe or Beneficial for Individuals with a Fontan Circulation?
Growing evidence shows exercise can be safe and beneficial for most people with Fontan physiology, representing a major shift from past recommendations based on exercise restriction and limitation. A clinician and patient offer their perspectives on exercise with a Fontan circulation.