CARE CENTERS

Joining the Fontan Outcomes Network

Emerging from the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC), FON is a new lifespan learning health network made up of a community of patients, families, clinicians, and researchers who together seek to transform outcomes for all people affected by single ventricle heart disease.

FON launched in 2021 with 12 care centers that have worked to establish a strong foundation for our network. FON welcomed an additional 19 care centers to the network in summer 2022. See below for a full list of FON care centers.

Are you a care center looking to improve outcomes for individuals affected by Single Ventricle Congenital Heart Disease (SVCHD)? Join the Fontan Outcomes Network (FON), a lifespan learning network made up of a community of patients, families, clinicians, and researchers dedicated to optimizing physical health, achieving ongoing developmental surveillance, and increasing emotional health and resilience for individuals with Fontan circulation. 

FON's Learning Health Network model focuses on facilitating research, driving improvement, and sparking innovation to transform outcomes for people affected by SVCHD. If you're interested in learning more about FON and the benefits of joining the network, please review https://www.fontanoutcomesnetwork.org/faqs. 

By joining FON, care centers will be part of an exciting collaborative effort that provides enormous value to their patients with SVCHD. We encourage you to take advantage of this opportunity to be part of a network that will transform what it means to live with SVCHD. If you have any questions about the application process or the next steps, please don't hesitate to contact us at info@fontanoutcomesnetwork.org. 

The benefits of participating in FON

While the primary motivation for your care center’s participation in our network will be to improve care and outcomes for individuals with single ventricle heart disease, FON will offer additional benefits for care centers, including:

  • Use of an advanced, flexible data platform with analytics and patient assessments, allowing detailed tracking of Fontan care through the lifespan

  • Access to registry data for quality improvement efforts

  • Authorship opportunities to publish research using more granular registry data

  • Faculty, staff, patient, and family member opportunities to serve on various workgroups and committees

  • Participation in bi-monthly case review conferences

  • Educational webinars and Single Ventricle Chats for patients and families

  • Participation in FON may soon come to be viewed by patients and families as a key factor in deciding where to receive their ongoing care

FON Care Centers