GET INVOLVED
Are you a person with or the parent of a child with single ventricle heart disease interested in the Fontan Outcomes Network? Chances are your child's hospital or care center may already be a participating member of FON.
Don't see your care center on our list? Ask how you and your care team can get involved at your child’s next clinic visit. And, even if your child’s care center isn’t a participating center, you can still participate! Ask how at info@fontanoutcomesnetwork.org.
Are you looking for more information on how you can support your child? Check out our parent partner organization, Sisters by Heart, or find additional tools and information on our Parent & Family Resources page.
Ways to Get Involved
FON Newsletter
Subscribe to FON’s monthly newsletter to keep up with important announcements and upcoming events.
Nominate a FON #HeartHero
Nominate a FON Heart Hero for a special spotlight on our website and social media pages.
Attend a Case Review Conference
During Case Review Conferences, FON Care Centers share learnings and expertise during through highly clinical patient-based case presentations and discussion.
Attend a Learning Session
Our next Spring Virtual Learning Session is on May 21! Learn more here.
Learning Sessions take place twice per year in the Spring (fully virtual) and Fall (in-person and virtual).
Join in on Single Ventricle Patient Day
Single Ventricle Patient Day is an exciting event created by patients for patients featuring informational programming surrounding mental health, family planning, transplant and devices, exercise, and more.
Additional details about the 2025 Single Ventricle Patient Day will be shared soon!
Participate in a Research Study
The FON Research Bulletin Board lists opportunities to participate in research studies.
Donate to Support FON
You can make a big impact in the future of care for individuals with Fontan Circulation by donating to FON today. Click here to learn more about supporting FON.
You can make a difference! Click for a pediatric or adult version of our flyer about the Fontan Outcomes Network, including an overview of the network and five ways you can engage with our work.
You can also click the appropriate link below to learn more about FON from a Patient & Family, Care Center, or Researcher perspective.
PATIENTS & FAMILIES
CARE CENTERS
RESEARCHERS
Help support the Fontan Outcomes Network (FON) in our commitment to working together to improve the care and outcomes for individuals with Fontan Circulation. One hundred percent of any gifts submitted at the link below will benefit the work of FON. Thank you for your gift of support!