Registration is now open for our FON & NPC-QIC Spring 2024 Virtual Learning Session!

Join us on Tuesday, April 16, from 11 a.m. to 4 p.m. EST, with an optional pre-session at 9:30 a.m. and repeated at 4:30 p.m. EST.

Register today to participate in this opportunity to build a stronger sense of community, learn about both networks' latest work, and share learnings.

There is no cost to attend the virtual learning session. Additional details, including the agenda, program, and Zoom information, will be shared with registered attendees via email in the coming weeks.

Presented by: Phoenix Children’s Hospital

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

• Host: Rady Children's Hospital-San Diego, UC San Diego School of Medicine

• Presenter: Dr. Howaida El-Said, director of the cardiac catheterization laboratory at Rady Children's Hospital-San Diego and professor of clinical pediatrics at UCSD

• Topic: Creating a connection of the azygous vein and the Fontan conduit in the catherization lab for a patient with left pulmonary AVMs

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Join us for the Fifth Annual Single Ventricle Patient Day during our Fall 2023 Learning Session, brought to you by the Single Ventricle Patient Day Planning Committee.

This event is exclusively designed by and for teens and adults with single ventricle circulation, aiming to foster connections, empowerment, and support within the community. Our primary focus is to equip participants with valuable tools to take charge of their congenital heart disease (CHD) care.

Mark your calendars for Saturday, September 23, from 9 a.m. to 4 p.m. CT, as we gather at the Hyatt Regency McCormick Place in Chicago, Illinois, for an engaging in-person event. Can’t join us in person? We’re excited to offer a virtual attendance option to ensure you don’t miss a moment!

To ensure a safe and open atmosphere, this session is exclusively for individuals aged 14 and above with single ventricle circulation, along with their significant others. We kindly request parents to refrain from attending this time.

If you have any questions or concerns, don't hesitate to contact us. We look forward to welcoming you and making this day truly memorable!

Register now for our Fall 2023 Learning session to participate.

Register Now: https://us06web.zoom.us/meeting/register/tZwtduCprDIoHdKiD8c7nriEXSZlolA14XzA 

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Register Now: https://us06web.zoom.us/meeting/register/tZwtduCprDIoHdKiD8c7nriEXSZlolA14XzA 

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Register today and join us on Friday, May 5 for this valuable opportunity for our learning health network to build a stronger sense of community, learn about the network's latest work, and share learnings.

Click here to view our high-level agenda! Session objectives include:

• Build community, with patients/parents, with clinicians, and across FON and NPC-QIC 

• Identify opportunities to engage in network activities 

• Describe current and in-design quality improvement projects

• Apply registry learnings to network activities, including improvement & research

Click here to learn more and register for the learning session.

The Single Ventricle Patient Day Planning Committee is excited to welcome you to our Third Annual Single Ventricle Patient Day. This session will take place virtually and was designed for patients by patients with the intent to connect and empower teens and adults with single ventricle circulation so they feel supported and uplifted, while gaining the tools to take control of their CHD care.

Due to the sensitive nature of this session and in an effort to ensure that patients feel comfortable speaking about the topics freely, this session is intended for individuals with single ventricle circulation aged 14 +, as well as their significant others. We are kindly requesting that parents refrain from attending. 

For an overview of the day, view the agenda at a glance.

Click here to learn more and register for Single Ventricle Patient Day.

You're invited! Register for the Fontan Outcomes Network’s Fall 2021 Virtual Learning Session, taking place Friday, October 29. Get updated on the state of the Fontan Outcomes Network, hear from patients and parents on the power of their involvement, and learn about engagement opportunities over the coming year!

For an overview of the FON learning session, view the agenda at a glance.

All members of the FON community, including any interested members of the public, are invited to our first hour, from 11 a.m. to noon ET. 

The latter three hours of the Learning Session, from noon to 3 p.m. ET will be exclusively for members of our 12 FON Founding Care Centers. See a list of these centers here. FON Key Contacts, look for further instructions on who to invite as team members in future The Pulse Weekly emails.

Click here to learn more and register!