EVENTS
Spring 2025 Virtual Learning Session
The FON and NPC-QIC learning sessions serve as valuable opportunities for our learning health network communities – patients, parents, caregivers, clinicians, researchers, and other care center team members – to come together to build a stronger sense of community, learn about both networks' latest work, and share learnings.
SV-ONE Informational Webinar
Learn more about the transition to SV-ONE during this informational webinar. Care center leads and key contacts should check their email for additional details! Please contact info@fontanoutcomesnetwork.org if you have questions!
SV-ONE Informational Webinar
Learn more about the transition to SV-ONE during this informational webinar. Care center leads and key contacts should check their email for additional details! Please contact info@fontanoutcomesnetwork.org if you have questions!
Case Review Conference
Presented by: University of Michigan
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
FON & NPC-QIC Fall Learning Session
We are gearing up for our Fall 2024 FON & NPC-QIC Learning in St. Louis, Missouri, from Friday, October 25 to Saturday, October 26. This year, we are excited to offer a Pre-Session, Five Methods of Learning from Data, on Thursday, October 24. Learn more about the Pre-Session here.
Learning Session Objectives:
Build community with patients, parents, and healthcare professionals on NPC-QIC and FON teams
Identify recent work and accomplishments within NPC-QIC and FON
Apply registry/survey data results to network activities, including improvement and research
Describe the Model for Improvement/Data Analytics in current NPC-QIC and FON improvement projects
Develop a team 90-day action plan for building or strengthening community with patients and parents
Discuss topics across lifespan that impact single ventricle care and outcomes