FON & NPC-QIC Spring 2025 Virtual Learning Session

FON & NPC-QIC Spring 2025 Virtual Learning Session Program

Welcome to the FON & NPC-QIC Spring 2025 Virtual Learning Session Program Page. Please access messages, materials, and resources for our learning sessions via the links below.

If you need assistance, please email us at info@fontanoutcomesnetwork.org or info@npcqic.org.

Don’t miss our informative Breakout Session options, beginning at 1:05 p.m. ET!

 

  • Welcome to the FON and NPC-QIC Spring 2025 Virtual Learning Session!

    Our theme for this learning session is Transitions, focusing on the transition to SV-ONE and our evolving lifespan approach as a joint network.

    Our Global Learning Session Objectives are:

    • Identify recent and upcoming activities and accomplishments within NPC-QIC and FON

    • Describe current NPC-QIC and FON improvement projects and data analytics

    • Discuss topics across the lifespan that impact single ventricle care and outcomes

    • Build community with patients, parents and healthcare professionals and develop a team 90-day action plan

  • Agenda

    View the Spring 2025 Learning Session agenda here.

    See our full list of presenters!

  • Zoom details and additional session information will be shared via email with registered attendees in the weeks leading up to the event. You must register to receive login information.

    Zoom Etiquette Reminders

    To ensure a smooth session experience for all attendees, please keep the following in mind:

    • We encourage you to find a quiet room, free from distractions, to participate in the Virtual Learning Session.

    • Change your Zoom name to feature your name and title, or your care center name if you join the session as a group.

    • Using a Zoom background highlighting your care center or organization is recommended.

    • Please use the 'raise your hand' feature and wait to be called on before speaking. Remain muted when not speaking.

    • We encourage you to introduce yourself before speaking or asking questions.

    • While the agenda includes time for breaks, we encourage you to turn off your camera and microphone to excuse yourself for a break as needed.

    • Refrain from writing any protected health information (PHI) or private details about yourself or others in the chat box.

    • If the Zoom call suddenly ends, please check the email address you used for registration for instructions on re-joining the session.

  • Post Event Survey

    Our Community Building & Engagement Workgroup has created a Post Virtual Learning Session Survey to learn about your experience and make improvements for future learning sessions. This brief 5 question survey for patients and families takes approximately 5-7 minutes to complete. Respondents who submit their survey by June 6 will be entered into a drawing for the Sisters by Heart Warrior Wednesday feature! Take the survey here!

    Join the Single Ventricle Patient Day Planning Committee

    We are looking for a new member to join the Single Ventricle Patient Day Planning Committee! The role involves monthly virtual planning meetings to organize the next Single Ventricle Patient Day, which we aim to hold in the fall alongside the Fall Learning Session. Any individual aged 14+ with single ventricle heart disease is welcome to apply by May 28! Click here for details!

  • The agenda includes two Team Time sessions for discussion with your care center team: the SV-ONE Transition Team Time at 12:05 p.m. ET, and Self-Guided Reflection & Planning Team Time session at 4:05 p.m. ET. 

    Please prepare for Team Time by:

    • Reserving a meeting space for collaboration or planning a virtual meeting for both sessions (12:05-12:30 p.m. ET and 4:05-5 p.m. ET).

    • Downloading a copy of the Team Time worksheet or having printed copies available for your team to use during the SV-ONE Transition Team Time at 12:05 p.m. ET

    • Fillable PDF version

    • Word Document version

  • Help us improve future learning sessions by submitting feedback. We ask all attendees to submit an evaluation via the link below no later than June 22.

    Note: To obtain CME/CNE credit, clinicians will need to click on the link at the end of the evaluation. CME/CNE must be claimed by June 22.  

    Click here to access the CME/CNE instructions sheet.

    Click here to access the Learning Session Evaluation with CME Link (this link is located at the end of evaluation).

  • Connect with more than 500 attendees via social media throughout the Learning Session by using #NPCFONVLS! Be sure to check out the FON & NPC-QIC Facebook accounts throughout the day for updates!

  • Learning Session Slide Decks and Recordings will be available following the conclusion of the learning session.

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Meet the Presenters

  • Kiona Allen, MD

    Lurie Children’s Hospital of Chicago

    SV-ONE ELT

  • Shahnawaz Amdani, MD, FACC, FAAP

    Cleveland Clinic Children’s Hospital

  • Jeff Anderson, MD

    Cincinnati Children’s

    SV-ONE ELT

  • Mike Bingler

    Nemours Children's Hospital

  • Jesse Boyett Anderson, MD, MS

    Pediatric Cardiology, University of Wisconsin, American Family Children’s

  • David Brown, MD

    Boston Children’s Hospital

    SV-ONE ELT

  • Andrew Cheng, MD

    Associate Professor of Clinical Pediatrics, Children’s Hospital Los Angeles

  • Michael Danduran, PhD

    Exercise Physiologist, Children’s Wisconsin

  • Jessica Davis, MSN, CRNA, IBCLC

    Clinical Partnership Liaison at Healthy Start Inc., UPMC Children’s Hospital

  • Jo Ann M. Davis, ACPNP

    Single Ventricle Advanced Practice Provider; Ambulatory Cardiology APP Clinical Leader, Nationwide Children’s Hospital

  • Hema Desai, MS CCC-SLP, BCS-S

    Children's Hospital of Orange County

  • Mike Di Maria, MD

    University of Michigan C.S. Mott Children’s Hospital

  • Andrew Freddo, MD, PhD

    Pediatric Cardiology Fellow, Children's Hospital of Philadelphia

  • Christina Garcia-Ramirez

    Individual with SVHD, Fontan Outcomes Network

  • Tom Glenn, MD

    Texas Children’s Hospital

    SV-ONE ELT

  • Michael Groat, PhD

    President and CEO, Lindner Center of HOPE/University of Cincinnati Department of Psychiatry

  • Jared Hershenson, MD

    Children’s National Hospital

  • Roni Jacobsen, MD

    Children’s Hospital Colorado

  • Richard James

    FON Patient/Parent Director

    SV-ONE ELT

  • Emily Jones

    Certified Child Life Specialist, Cincinnati Children’s

  • Sarah Jones

    Clinical Research Coordinator, Cincinnati Children’s

  • Nadine Kasparian, PhD, MAPS

    Professor of Pediatrics, Cincinnati Children’s

  • Sarah Kelly, PsyD

    Associate Professor and Pediatric Psychologist, Children's Hospital Colorado

  • Adira Knapke

    Individual with SVHD

    University of Iowa Stead Family Children's Hospital

  • David Leone, MD

    Assistant Professor of Pediatrics, Cincinnati Children's

  • Elisa Marcuccio, MD

    Cincinnati Children’s

  • Devin McNulty, PhD

    Pediatric Psychologist, Ann & Robert H. Lurie Children’s Hospital of Chicago

  • Yessica Martinez

    Individual with Single Ventricle Heart Defect

  • Sandra McCormick, PhD, RN

    Associate Professor, Department of Nursing and Public Health, Elmhurst University

  • Meg Olson

    Parent of an Individual with Single Ventricle Heart Disease

  • Sasha Opotowsky, MD

    Cincinnati Children’s

    SV-ONE ELT

  • Lacie Patterson

    President, Sisters by Heart

    SV-ONE ELT

  • Whitney Pierce, BSN, RN, CPN

    Children’s Mercy Kansas City

  • Trudy Pierick, MSN, ARNP, CPNP-PC

    University of Iowa Stead Family Children’s Hospital

  • Sarah Plummer, MD

    Co-Director, Single Ventricle Program, Rainbow Babies & Children’s Hospital

  • Jack Rychik, MD

    Children’s Hospital of Philadelphia

    SV-ONE ELT

  • Ilana Schwartz, MD

    Clinical Assistant Professor, University of Michigan C.S. Mott Children's Hospital

  • Rachel Shustak, MD

    Children’s Hospital of Philadelphia

  • Tracey Sisk, RN, MHA

    Heart Center Ambulatory, Nationwide Children’s Hospital

  • Erica Sood, PhD

    Senior Research Scientist and Pediatric Psychologist, Nemours Children's Health

  • Michelle Steltzer, CPNP, APRN-NP

    Advanced Practice Provider, Single Ventricle Program Coordinator, Outpatient Cardiology, Ann & Robert H. Lurie Children’s Hospital of Chicago

  • Spencer Timmel

    Creator of Scratch Golf, Congenital Heart Alliance of Cincinnati

  • Casey Vogel, PT, DPT, PCS, CCS

    Physical Therapy Heart Center Lead, Ann & Robert H Lurie Children's Hospital of Chicago

  • Avery Weisdorfer

    Individual with SVHD

  • Tricia Williams, PhD

    Associate Scientist, Clinical Neuropsychologist, Hospital for Sick Children