Physical Activity & Exercise Tools
Active Living with Fontan Circulation Toolkit
The Active Living with Fontan Circulation Toolkit is a set of guides for patients and families that emphasizes the importance of physical activity for children with Fontan Circulation. We encourage families to engage with their healthcare providers to select activities that enhance heart health, coordination, and overall well-being.
If you are a healthcare provider, please view the Clinician’s Guide for guidance on using these tools within your care team and recommending tools and activities to patients and families.
Acknowledgements
This toolkit was developed by the FON Physical Activity & Exercise Workgroup consisting of healthcare providers, patients, and parents of individuals with single ventricle heart disease.
Executive Sponsor: Carole Lannon, MD, MPH
QI Workgroup Representative: Katie Dodds, Nurse Practitioner
Toolkit Workgroup Co-Leads:
Michael Danduran, Exercise Physiologist
Jesse Hansen, Pediatric Cardiologist
Toolkit Workgroup Members:
Jared Hershenson, Pediatric Cardiologist
Meagan Houpt, Adult Patient
Roni Jacobsen, Adult Cardiologist
Phoebe Proctor, Young Adult Patient
Casey Vogel, Physical Therapist
Lisette Wylie, Nurse
Toolkit Patient/Parent Review Group:
Christina Garcia, Adult Patient
Meg Olson, Parent
Whitney Pierce, Adult Patient
Rachael Satake, Parent
FON Executive Leadership Team:
Tom Glenn, MD, Patient/Parent Director
Richard James, Patient/Parent Director
Carole Lannon, MD, Collaborative Science Director
Sasha Opotowsky, MD, Executive Co-Director
Jack Rychik, MD, Executive Co-Director
Using this Toolkit: For Families
The Active Living with Fontan Circulation Pre-K to Grade School Toolkit was designed to be useful for many years as young individuals with Fontan circulation grow and develop. We currently offer grade school tools and intend to expand to include tools for adults in the near future. Always consult with your child’s medical team before taking on new lifestyle changes.
Since the toolkit has too much information to digest in one reading, we recommend you start by looking at the Toolkit Map below. Each box represents a specific tool in our toolkit- see what jumps out to you. Start there! The rest of the tools will be here as you need them. We hope these tools help you start and continue conversations with your family members, medical team, and community.
The individual tools are available to download below on this page. You may also access the full-length Active Living Toolkit, which contains every tool, here. The Active Living Toolkit is also available in Spanish/Español.
Use the buttons below to jump to a specific section of the toolkit.
Activities & Exercises
Building Resilience
Additional Resources
Are you looking for more information on support for yourself or a loved one? Check out our partner organizations, Sisters by Heart and NPC-QIC.
Using this Toolkit: For Healthcare Providers
The Active Living with Fontan Circulation Clinician’s Guide resources were designed to empower healthcare providers with the information they need to understand use cases, content, and which care team members should be involved in the discussion for each section of the toolkit as you look to recommend tools and activities to your patients. The full-length Clincian’s Guide is available for download here.
Active Living with Fontan Circulation: A Clinician’s Guide